WELCOME

 

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Welcome to FND Hope,

Functional Neurological Disorder provides an umbrella term for a variety of symptoms of apparent neurological origin, but which current models struggle to explain psychologically or organically. Presentation may be similar to a wide range of other neurological conditions from Non-Epileptic Seizures to Dystonia.

You have most likely been given a diagnosis and sent home with very little information.  This leaves patients feeling like What now?   Some want to know about Research, some want to participate in Clinical Trials, some are looking for Support, and some just want answers from a specialist.  World renowned leading movement disorder specialist Dr. Mark Edwards has kindly spent many hours helping to provide this information by answering many patient questions.

There are many terms that doctors and others use to define FND/CD. Terms and Definitions is a page to help you navigate through all of the words you many not yet be familiar with.  We have also provided you with an acronyms page you may find helpful as well. FND Research is constantly being updated and even since 2011 there have been many advances in the understanding of Functional Neurologic Disorder  The Quick Reference page quickly highlights the most prominent.

Our Natural Healing section is under construction but still provides a wealth of information for self help therapies others with FND have benefitted from.  The best help comes from the Advice of Others that have already experienced this disorder and are also working their way through the obstacles to find a better healthier life.  Read Real Stories, Real People.

Lack of knowledge and understanding has prompted many to Build Awareness in different ways.  The Finding Hope page is a compilation of awareness videos including the first ever FND awareness video entered into the NeuroFilmFestival in 2013 where it ranked in the top 6 out of 80 for viewer choice.

Our goal is to promote awareness, support affected individuals, and advance research.  In doing this we hope to empower those affected to achieve a higher quality of life.  We strive to not only help you be the best you, but also help you find hope for better days.  Many say isolation is the worse thing about this disorder.  This is saying volumes to the amount of pain and suffering many experience everyday.  We hope you find comfort knowing you are no longer alone in this journey.

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