Welcome to FND Hope,
Functional Neurological Disorder provides an umbrella term for a variety of symptoms of apparent neurological origin, but which current models struggle to explain psychologically or organically. Presentation may be similar to a wide range of other neurological conditions from non-epileptic seizures to dystonia.
Patients are often given a diagnosis and sent home with very little to no information. This leaves patients feeling what now? Some want to know about research, some want to participate in clinical trials, some are looking for support, and some want answers from a specialist. World renowned movement disorder specialist, Dr. Mark Edwards, has kindly spent many hours providing helpful information, by answering common patient questions by video and in writing.
There are many terms that doctors and others use to define FND/CD. Terms and definitions is a page to help you navigate through all of the words you may not yet be familiar. We have also provided you with an acronyms page you may find helpful as well. FND research is constantly being updated. Since 2011, there have been many advances in the understanding of Functional Neurologic Disorder, the quick reference page quickly highlights the most prominent.
Our treatment and healing section provides a wealth of information about self help therapies and conventional treatments. The best help comes from the advice of others that have already experienced this disorder and are also working their way through the obstacles to find a better healthier life. Read real stories, real people.
Lack of knowledge and understanding has prompted many to build awareness in different ways. The there is hope page is a compilation of awareness videos including the first ever FND awareness video entered into the NeuroFilmFestival in 2013 where it ranked in the top 6 out of 80 for viewer choice.
Our mission is to promote awareness, support affected individuals, and advance research. In doing this we hope to empower those affected to achieve a higher quality of life.
We strive to not only help you be the best you can be, but also help you find hope for better days. Many say isolation is the worse thing about this disorder. This is saying volumes to the amount of pain and suffering many experience everyday.
We hope you find comfort knowing you are no longer alone in this journey.
In 2014 we will be focussing on the Youth of FND. The following is our 2014 “Awareness Video” specifically for youth to share with others in order to explain the condition and what it is like to live with FND.
Dr. Stone is joined by Dr. Murray holding an FND Hope sponsored patient support meeting in Glasgow. Dr. Stone answers patient’s FND questions. We would like to thank both he and Dr. Murray for their time.
The following video is a recap of our week in the UK. It is also the speech given at a FND training day in Birmingham UK for medical professionals. Every medical professional should listen before treating a patient with a functional diagnosis.
Video for youth (or anyone) to share to help explain their illness to others.
Get POSITIVE and get FUNCTIONAL with FND Hope Mind Body Soul. This is a private support page promoting better health for Functional Disorders and chronic illness. Only members of the group will see your posts. This group is only for positive conversation with focus on nutrition, daily goals, positive affirmations, friendships, exercise, and a better you. JOIN US TODAY!