People often say the trite saying, “what doesn’t kill you, makes you stronger.” What they don’t explain is how you get through the time that passes between what didn’t kill you and the point where you did, in fact, get stronger.
FND Hope was created to offer support and to provide tools you may need on your journey to healing and finding better health. Please know this does not necessarily mean symptom-free. For some “better” may mean cured, but for others “better” means fewer symptoms. The tools you need varies based on your individual and personal journey to becoming stronger. Because sometimes “what doesn’t kill you” makes you confused, lost, alone, hurt, scared, insecure and debilitated.
We created the Q & A page incase you may be finding it difficult to get direct, clear answers to your questions. Even the diagnostic label seems to be riddled with confusion leaving patients and professionals confused by the many terms used. However, many individuals do not feel that these ‘other’ terms fit their illness experience. If we can indeed agree that the mind and brain are one, then it is only logical that we choose a term that is inclusive of both.
Knowledge is power, but the information can be overwhelming. We have provided the basics of FND to help with the confusion, a link to others for support, and information to cope and help with the physical symptoms. Our goal is to empower FND patients to better health and provide support material in our FND Kit.
The reassurance we can offer is that you are not alone in this endeavour and there is hope. We encourage you to be proactive in your care and feel empowered that you are capable of achieving great things.
Sending hope for better days!
Adjusting to FND Life
If you are mobile then get outside. It may possibly be more difficult and/or take more preparation, but the benefits of even just sitting outside, going for a walk, taking a scenic drive, and so forth will boost your spirits.
Volunteering and giving are great ways to feel good about yourself. There are many organizations needing help. Science shows that we can get as much out of volunteering as the people we are giving our time for or to.
Perception of Self & Others
Most of us forget or are not aware, that our beliefs or the beliefs of those around us can have a dramatic effect on what we achieve in life. Limiting beliefs can stop us from performing at our best.
Many find strength in faith and a higher power. It is also a great place to build a support system.
1 Sarah M. Kranick, MD, Tristan Gorrindo, M.D., and Mark Hallett, MD.Psychogenic Movement Disorders and Motor Conversion: A roadmap for collaboration between Neurology and Psychiatry. Psychosomatics. 2011 May-Apr; 52(2) 109-116. [PubMed]
Real People. Real Stories.