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About FND Hope UK

About FND Hope UK

Our History

FND Hope UK is part of the first and only global patient-led charity for people with Functional Neurological Disorder. Originating as a grassroots campaign, it uncovers the hidden world of FND and empowers those affected to live their best possible life.

FND Hope’s grassroots journey began on 13th April 2012 when fndhope.org became the first patient based website specifically for patients diagnosed with Functional Neurological Disorder. Our site originally provided only a handful of pages containing information, most of which was not available elsewhere. Shortly after, FND Hope became the first and only non-profit patient advocacy organisation in the world specifically for those diagnosed with Functional Neurological Disorder when they later attained their charity registration in the US.

The hard work and dedication by a few UK advocates, patients and medical professionals working together has become fruitful and FND Hope UK started supporting our UK FND community in 2015 and later became a registered CIO in England and Wales 28th June 2017 #1173607 and the first charity to be registered in Scotland 28th April 2018 #SC048333.

We promote awareness of FND through education and raising public understanding in England, Wales and Scotland. We are dedicated to supporting those individuals affected with functional symptoms by advancing research into practical applications for the prevention, treatment and recovery of FND.

We are uniting patients and their families from the UK with leading researchers and advocates to pioneer a new standard of care for FND throughout the world.


Our Mission

Our mission is to promote awareness, support affected individuals, and advance research for the prevention , treatment and recovery of FND


Our Vision

A world where FND patients can expect to be treated with dignity, care and respect, regardless of the cause of their symptoms


Our Values

We are a force for change, uniting the FND community in the pursuit of empowering and improving the health and of those diagnosed with FND or battling medical uncertainty:

  • Empowering individuals to advocate for themselves
  • Growing a supportive patient network
  • Improve understanding through education
  • Cultivating and pioneering best practices for ethical patient-centred care
  • Build an environment of collaboration and communication
  • Accelerating and support science based research
  • Fostering receptively to new discoveries
  • Operate with integrity and transparency

Registered Charity England & Wales 1173607 Objectives

The relief of sickness and preservation of health of those affected by Functional Neurological Disorder (FND) and their families, carers and communities.  In particular, but not exclusively by:

  • Raising awareness and understanding of the general public into the nature, causes, diagnosis, prevent, treatment and recovery of FND through social media, charitable events, medical conference and any other educational means such as leaflets and booklets.
  • Coordinating a voluntary FND patients register to assist doctors in the advancement of new and ongoing research, prevent, treatment and recovery of FND in partnership with the Genetic Alliance.
  • Working with Medical and Allied Health Professionals to provide a better understanding of FND, improve medical protocols, and promote ethical standards for FND through personal contact, advocacy and training.

Registered Charity Scotland SC048333 Purpose and Objectives

Charity Purpose
B - the advancement of education
D - the advancement of health
N - the relief of those in need by reason of age, ill-health, disability, financial hardship or other disadvantage

Charity Objectives
The relief of sickness and preservation of health of those affected by Functional Neurological Disorder (FND) and their families, carers and communities. In particular, but not exclusively by:

  • Raising awareness and understanding of the general public into the nature, causes, diagnosis, prevention, treatment and recovery of FND through social media, charitable events, medical conferences and any other educational means such as Leaflets and Booklets.
  • Coordinating a voluntary FND parents register to assist doctors in the advancement of new and ongoing research, prevention, treatment and recovery of FND in partnership with the Genetic Alliance
  • Working with Medical and Allied Health professionals to provide a better understanding of FND, improve medical protocols, and promote ethical standards for Functional Neurological Disorder through personal contact, advocacy and training.

We are members of ..


Our Registered Address

FND Hope UK

21 Chetwode, Banbury, Oxfordshire, OX16 1QN


Charity Returns and Offical Documentation


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