Who are we?
FND Hope UK is managed by its board of trustees who have experience of Functional Neurological Disorder and its impact.
As a board of trustees, we plan the strategic development of FND Hope UK (Registered Charity England & Wales 1173607 and Scotland SC048333) and are responsible for its policies and work of the charity. We have a range of business, financial, management and legal experience.
Our Legal duties are to:
- Act in our charities best interest
- Manage our charities resources responsibly
- Act with reasonable care and skill
Trustees are elected by FND Hope UK and serve for a minimum of 3 years.
If you are interested in becoming a Trustee, please contact FND Hope UK for further information
Meet Our Trustees for England & Wales
Matt, Chairperson of FND Hope UK, is a Chartered Accountant and seasoned IT professional with over 20 years’ experience of helping organisations transform themselves through using technology. Matt brings his professional expertise in strategic business planning and analysis; financial management; project management; process improvement; compliance; and IT infrastructure.
Having acted as an advisor to many global industries, Matt is an experienced communicator and negotiator at all levels within an organisation. He can foster and build relationships across cultures having led and worked with many multi-country teams.
Matt’s wife was diagnosed with FND in August 2015 after suffering with symptoms for many years. As her carer, he knows the day by day struggles that go with trying to cope with everyday life. He is passionate about raising awareness of FND and increasing the availability of multi-disciplinary support to help sufferers and their families.
Dawn is a Trustee and the Executive Director of FND Hope UK, a registered charity in England & Wales (1173607) and Scotland (SC048333), advocating for those diagnosed with FND.
Dawn is an experienced Process Design Analyst and Project Manager and is an accredited Six Sigma Green Belt and Prince 2 Practitioner.
Dawn started volunteering with FND Hope International in September 2015 as a Project Manager for their International awareness campaign, and moved to become a Resource Manager, then HR Manager, following her FND diagnosis in June 2015.
In 2017, Dawn helped to achieve charity status for FND Hope UK, where she was invited to become the Executive Director of FND Hope UK.
Dawn feels passionate about spreading awareness of FND and working collaboratively with other countries and medical and allied health professionals to share experiences and learning’s
Cindy has been an experienced Global Training Consultant for the past 27 years and helps people improve how they present and communicate within the corporate world, she brings with her professional expertise as a Professional and Motivational Speaker, Sales and Management consultant and works for some of the top Fortune 500 Companies in many different industries from banking to pharmaceuticals.
Cindy is a wife and mother to 2 children and joined our Board of Trustee on the 3rdOctober 2018 after one of her children received a diagnosis of FND. Cindy is very keen and passionate in helping to support all the parents and carers within our community under the age of 18 years old, and challenge the lack of treatment protocols in place for our young adults.
Robert is a proud Welshman, something he rarely lets people forget. He has been a practicing barrister-at-law since 1977, before which he read for a degree in chemical engineering. His legal practice started in intellectual property (on which he is the co-author of a number of reference books) then developed into licensing technology, mostly in a hi-tech environment, complex international commercial contracts, international law, telecommunications and data protection.
He developed Functional Neurological Disorder, rapid onset, following a major chemical clash and two cardiac arrests, after an operation to remove a tumour on his kidney, in late 2016.
Robert is no stranger to long-term and life-changing illness. He is not ashamed to admit that he has been bipolar, probably since his mid-teens, although he was formally diagnosed only in 1989. He also has lived with Type 1 diabetes since 1996. Both these conditions are well controlled. He survived major surgery for neck and throat cancer in 2006 and was pronounced cancer free in mid-2018.
Bridget Mildon, is the Founder of FND Hope and past Chairperson of FND Hope UK. She works with leading specialists around the world to educate medical professionals and tackle the common misunderstandings, not only about patients with functional disorders, but also about diagnostic error and the coding crisis. She has a diverse and unique approach to this field, which she has gained through advocacy work with patients.
Bridget became interested in functional illness after she experienced a world of medical uncertainty. When her medically unexplained puzzle morphed into a medically explained picture and she finally received proper treatment, Bridget transitioned into the medical world, actively engaging as a patient advocate.
Bridget spends most of her time helping patients and doctors understand Functional Neurological Disorder. She has had the opportunity to attend and give remarks at various FND training seminars including Birmingham, England. While in the UK, Bridget met with leading researchers in the FND field from Scotland and England, holding patient support meetings throughout the UK. She has submitted commentary to the pertinent work groups connected with DSM and ICD coding changes, and a response in the British Medical Journal advocating for those with functional symptoms.
Bridget is a wife and mother of three. She feels passionately about spreading awareness, and bridging the gap between what is known and what is believed about Functional Neurological Disorder.
Louyse McConnell-Trevillion, BComm (Hons) (Edinburgh Uni), DipLP,(Edinburgh Uni) PC.dp, Solicitor, Notary Public, lives in Scotland with her husband and two children. “Lou” studied law at Edinburgh University and later worked as a Scottish Government lawyer for 16 years. During that time she provided advice to the Lord Advocate and the Solicitor General in their responsibilities under the Scotland Act 1998 and other non-criminal matters. Lou advised on the legality of laws passed by the Scottish Parliament, prepared Opinions for the Lord Advocate in relation to Government and liaised with solicitors from the UK Government Law Officers and the Scottish Parliament. Her main legal specialism is in data protection and freedom of information providing advice on this during her time with the Scottish Government and was responsible for ensuring that data protection was built into the Public Inquiry during its design stage.
Like many others, Lou’s journey to formal diagnosis of FND was a long one. A decline in health led Lou to leave the Scottish Government and established a Consultancy Business with her husband providing advice on data protection and freedom of information. Lou states, “In her early 20s I would suddenly fall to the ground with no warning. As they were infrequent I paid them little attention.” In 2012 Lou was admitted to hospital as she was completely paralysed and intermittently mute. After being tested for numerous possible conditions she was referred to a specialist Consultant Neurologist and diagnosed with FND.
Lou is quick to say, “My family and I have had to teach ourselves how to deal with my FND and its impact not only on myself but also on them. They give me excellent support. I feel very honoured to be a member of FND Hope UK and will work will all my energy and passion into achieving greater awareness, training and health care for those with FND and their families.”
Meet Our Trustees for Scotland